Another Milestone

 Another milestone - a year today Zack has his port fitted this was the start of our new reality. The start of our journey, our new normal.

(Already wrote a blog about his port - if you Havnt read it and want to know more)  

This week we had a long chemo, we always expect a long day but this was something else. 
We had a hearing appointment first which was all fine. Chemo can affect a persons hearing so it needs fo be monitored. So Zack is a pro at this now. 
We head to the chemo ward and all is fine, we wait for the dr and the chemo. It all takes a long time and by now Zack is getting restless and won't sleep. They eventually hook him up to his chemo and he's exhausted so he sits in buggy with a cracker all happy and enjoying old McDonald.
 Zack always tries so get his port out as I think it itches him (so far until this day he has never succeeded) I put him on my lap and go to pick up something from the floor the next thing I know Zack is screaming, there is blood and chemo leaking all over him and me and he's pulled out his line! We run to get help - the nurses come dresssd in hazmat suits and clean up the mess, they took off all of Zack's clothes and put them in a toxic waste bag , make me wash down my arms and face and they give Zack a clean all over. 
It was like something out of a movie, Zack was inconsolable at this point and I was distressed trying to hold it all together and make sure he was okay. 

They clean the floor and everything around us and then leave the room. By the time they come back Zack is as happy as Larry enjoying being pushed in one of the cars by my dad asking for rice and broccoli! Me on the other hand is completely scarred from the whole thing. 

The nurses come back and explain what is going to happen next, they took more blood from him to check there is no infection from pulling out his line. They will grow his cultures to see if he needs any anti biotics and then let us leave. By now we have been at GOSH for what seems like a life time, Zack is beyond exhausted but is still smiling away. My little man has held it all together, he continues to be strong and continues to shine through all of this. 

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