Zack

  April 26th  We woke up early on the wednesday and headed straight for the PICU to see Zack. They said he was doing well and was happy and jabbering away. His face lit up when we got there. We sat there with him and waited for the drs to come round, they told us they were moving him to the KOALA ward which was a neurological ward. Again he had such lovely nurses who took care of him around the clock, we were allowed to leave him there at night and they looked after him. He smiled at all the nurses and was jabbering away more than ever. They obviously released all the pressure on his brain so he was now happier. Over the next day and a half we had many meetings with drs, nurses, physios and anethetists. He had to have lots of blood tests , seizure tests and heart monitor tests all ready for the operation he was about to have.

As I sit waiting for my 1 year old to have chemo I can't help thinking why him, why me, why our family.   It was April 25th and one of the worst days of our lives.  My 6 month old was just not himself I had taken him to A and E twice and had been dismissed, they said he was allergic to milk or was teething. This I knew was wrong I had a feeling it was worse than that. His head had got bigger, he was as crying a lot and he just wasn't happy, I had googled change in head size (which I now know I should never do) and all these terrible things came up, one which was a brain tumour, I read into all these horrible things and moved on to the next. In my mind I thought no way could it be a tumour babies don't get tumours! I mentioned this next time I went to A and E and the first Dr I saw laughed at me and said "no babies don't get tumours", so I was very reassured. The third time I took him to A and E we went early in the morning, Zack was being sick and I just thoug...